Drive Meaningful Change: Advocacy, Research & Policy Advancement

Advocacy, Research & Policy Advancement

In addition to coaching and education, we bring deep experience supporting advocacy, clinical infrastructure, and systems-level change:

Launched and grew a national clinical and research center network (CRCN) at the PCD Foundation (now 55+ and growing) to support diagnosis and treatment (CF Model)
Designed and deployed a clinical registry for natural history study along with protocol, financial and legal agreements and negotiations. (rolled out to 40+ sites and growing)
Led multi-stakeholder pilot to demo feasibility of developing scalable screening method to shorten rare disease diagnostic odyssey (Stanford to take study forward(!); TBD publication)
Current board member of Healthier Colorado, advancing evidence-based health policy, supporting strategy and research (example)

As a consultant and collaborator, we support:

Strategy development across complex issues and systems
Stakeholder engagement including clinician/researcher alignment
Advocacy-driven messaging and infrastructure design
Metabolic and mental health, rare disease and chronic condition program development

If you are a nonprofit, research consortium, foundation, or policy partner seeking to drive meaningful change, we can help bring your vision to life.