Community + Advocacy:
Expanding Health Impact Beyond the Individual
The Bigger Picture
At WellSelf 360, we believe health transformation happens not only one-on-one, but also across communities, systems, and public spaces where care, access, education and culture intersect.
Drawing from more than 16 years of experience in rare disease research, public health, and policy collaboration, I work with nonprofits, advocacy groups, and public agencies to design initiatives that strengthen resilience, expand access to care, and bridge the gap between science, systems, and lived experience.
How I Contribute
Community + Corporate Coaching
Research, Advocacy + Policy Collaborations
My work is grounded in systems strategy and data ecosystem design. I help organizations and agencies connect research, policy, and lived experience to build frameworks that drive measurable impact and long-term sustainability.
Recent and past collaborations include:
These projects share a common goal: Creating connected systems where science, policy + human experience work together.
At WellSelf 360, we believe health transformation happens not only one-on-one, but also across communities, systems, and public spaces where care, access, education and culture intersect.
Drawing from more than 16 years of experience in rare disease research, public health, and policy collaboration, I work with nonprofits, advocacy groups, and public agencies to design initiatives that strengthen resilience, expand access to care, and bridge the gap between science, systems, and lived experience.
How I Contribute
Community + Corporate Coaching
- I partner with nonprofits, advocacy and corporate organizations to create educational programs and initiatives that help communities and teams better understand the drivers of health and well-being - physical, mental, emotional, and social.
- These initiatives often include speaking engagements, community workshops, educational campaigns, or group coaching models focused on building self-awareness, resilience, and capacity for change within real-world settings.
- Whether it’s helping parents navigate the challenges of complex conditions, supporting community leaders in mental health education, or co-designing wellness programs, the goal is always to make evidence-informed tools both accessible and actionable.
Research, Advocacy + Policy Collaborations
My work is grounded in systems strategy and data ecosystem design. I help organizations and agencies connect research, policy, and lived experience to build frameworks that drive measurable impact and long-term sustainability.
Recent and past collaborations include:
- Building a national clinical and research centers network and data registry for rare disease collaboration. PCDF-CRCN currently includes over 60 academic and research centers at sites at various stages of accreditation and continues to grow. PCDF Registry deployed at 45+ sites.
- Collaborating with the Chan Zuckerberg Initiative (CZI), Datavant, and Komodo Health on a pilot to explore the feasibility of screening for PCD in pediatric patients using a machine learning approach as a model that could be leveraged more broadly for other rare diseases. Awaiting publication. Phase 2 to expand on pilot/to be led by team at Stanford University.
- Partnering with Healthier Colorado to advance suicide prevention frameworks that integrate acute suicidality and systemic reform.
These projects share a common goal: Creating connected systems where science, policy + human experience work together.
Let's Collaborate:
If you are a nonprofit, research consortium, foundation,
or policy partner seeking to drive meaningful change,
we can help bring your vision to life.
If you are a nonprofit, research consortium, foundation,
or policy partner seeking to drive meaningful change,
we can help bring your vision to life.