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  • Patients, Families and Patient Support Groups
  • Healthcare Providers and institutions
  • Rare Disease Registries and Insights
  • Corporate Wellness Companies
  • Our Story
  • Blog


ditch the silos & Create A platform of discovery

Accelerate Research, Therapies and Care in Rare Disease
Develop a platform of discovery, Break down the silos   
We can help you to assess your needs, identify gaps and create an approach to help you align the people, process and technology you need to support patient and/or clinician-reported data collection/registries. This includes the identification of what other kinds of data would be helpful to include for analytics to support progress/insights (i.e. genetics, genotype/phenotype).​ 
Sample Project:
Ditch the Silos & Create an Ecosystem of Discovery 
Patient Registries: Ditch the Silos and Create an Ecosystem of Discovery from Carey Kauffman, CPHWC, CWHE

    Let's discuss your project or ideas!

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